Indigenous Data Sovereignty is the recognition and implementation of Indigenous Peoples' inherent right to control the entire lifecycle of data concerning their people, territories, resources, and knowledge; including collection, ownership, access, analysis, interpretation, use, and dissemination of data. This right is rooted in their inherent self-determination and sovereignty.
Indigenous Intellectual Property centers on the inherent rights of Indigenous Peoples to protect their traditional knowledge, cultural expressions, and heritage. It recognizes the relationship Indigenous peoples have with their intellectual and cultural knowledge, which is often held collectively and passed down through generations.
Indigenous data is information generated by, for, alongside, or about Indigenous communities. This data can take numerous forms, including photographs, videos, audio recordings, written documents, and datasets.
Article 31
1. Indigenous peoples have the right to maintain, control, protect and develop their cultural heritage, traditional knowledge and tradition- al cultural expressions, as well as the manifestations of their sciences, technologies and cultures, including human and genetic resources, seeds, medicines, knowledge of the properties of fauna and flora, oral traditions, literatures, designs, sports and traditional games and visual and performing arts. They also have the right to maintain, control, protect and develop their intellectual property over such cultural heritage, traditional knowledge, and traditional cultural expressions.
2. In conjunction with indigenous peoples, States shall take effective measures to recognize and protect the exercise of these rights
Various principles exist to guide research data management practices that respect Indigenous data sovereignty. However, interpretations of these principles are specific to the communities involved, which may not necessarily address the distinct needs and values of distinct First Nations, Inuit and Métis.
The CARE Principles for Indigenous Data Governance reflect the role of data in advancing Indigenous innovation and self-determination. CARE stands for:
More information about the CARE Principles is available from the Global Indigenous Data Alliance.
The OCAP® Principles of data governance outline how to interact with First Nations data. OCAP® stands for:
OCAP® is a registered trademark of the First Nations Information Governance Centre (FNIGC). Certified training in OCAP® is available through the FNIGC's website.
The following Métis-specific culturally competent ethical research principles are adhered to by the Métis Centre at the National Aboriginal Health Organization in its research, who note for outside groups who choose to use or adapt them that "The principles are not intended to be enforceable rules that must be followed but rather are a well thought out starting point to engage Métis communities in ethical research." (Métis Centre of NAHO, 2018)
Source: National Aboriginal Health Organization (NAHO) (2018). Principles of Ethical Métis Research. Retrieved February 08 2023 from https://achh.ca/wp-content/uploads/2018/07/Guide_Ethics_NAHOMetisCentre.pdf
The Manitoba Metis Federation subscribes to the following "OCAS principles":
Source: University of Manitoba, Rady Faculty of Health Sciences (2019). Framework for Research Engagement with First Nation, Metis, and Inuit Peoples (p.14). [PDF] Retrieved February 08 2023 from https://umanitoba.ca/health-sciences/sites/health-sciences/files/2021-01/framework-research-report-fnmip.pdf
The term Inuit Qaujimajatuqangit (IQ) describes Inuit epistemology or the Indigenous knowledge of the Inuit, which encompasses traditional knowledge, ecological knowledge, and local and community based knowledge. A fact sheet prepared for the National Collaborating Centre for Indigenous Health explores the six guiding principles of IQ and their application to research.
Source: Shirley Tagalik (2012). Inuit Qaujimajatuqangit: The role of Indigenous knowledge in supporting wellness in Inuit communities in Nunavut. [PDF] Retrieved February 08 2023 from https://www.nccih.ca/docs/health/FS-InuitQaujimajatuqangitWellnessNunavut-Tagalik-EN.pdf
